The decision to write to a donor family is yours alone.
The Texas Organ Sharing Alliance encourages written correspondence between recipient(s) and the donor family. However, whether you write to the donor family or not is your decision.
Because we feel strongly about safeguarding the privacy of a donor family and the recipient(s), all initial correspondence is anonymous. Identities are kept confidential until both the donor family and the recipient agree to release personal information about themselves and are willing to accept personal information about the other.
Will I Hear From the Donor Family?
You may or may not hear from the donor family. Some donor families have said writing about their loved one and the decision to donate helps them in their grieving process. Others, even though they are comfortable with their decision to donate, prefer privacy and choose not to write to a recipient.
Remember, the donor family may still be coping with the loss of their loved one, and individuals manage grief in different ways.
If you would like to write to a donor family, the following are some guidelines for you:
Guidelines for Writing to a Donor Family
Talk about yourself:
- Include your first name only.
- You may tell them what state you live in but do not include your address, city or your phone number.
- You may write about your job and/or occupation.
- You may write about your family situation such as your marital status, your children or grandchildren. (No last names).
- Let them know about your hobbies or other interests.
Talk about your transplant experience:
- Describe how long you waited for your transplant. What was the wait like for you and your family.
- Explain how the transplant has improved your health and changed your life.
- Can you participate in activities now that you couldn’t before your transplant?
- Explain what has happened in your life since your transplant. (Did you celebrate another birthday? Did your son or daughter marry? Did you become a parent or grandparent? Did you return to school or start a new job?)
- Do not reveal the name, location of the hospital or your physician.
Other things to consider:
- Use simple language.
- Recognize the donor family and thank them for their gift.
- Since the religion of the donor’s family is unknown, please consider this if you are including religious comments.
Mailing your card/letter:
- Place your card/letter in an unsealed envelope.
- Include a separate piece of paper with your full name and date of your transplant.
- Place these items in another envelope and mail them to:
Clarissa Thompson
Donor Family and Volunteer Services Coordinator
Texas Organ Sharing Alliance
8122 Datapoint, Suite 200
San Antonio, Texas 78229
If you choose to mail your correspondence to the transplant center, the transplant center will forward your letter to the Texas Organ Sharing Alliance. Our Donor Family and Volunteer Services Coordinator will review your letter to ensure confidentiality and will then forward your card/letter to the donor family.
Since your card/letter must go through so many hands, it may take a few weeks for the donor family to receive your letter. If you want the card/letter to arrive by a specific date, please allow extra time for it to reach the donor family.
Should I Write to My Donor Family?
We know most transplant recipient(s) are curious about their donor. They write to their donor family in hopes of receiving a letter in return which will tell them something about the donor who is now a part of them.
We also know donor families want to know about the people who received their loved one’s organs, specifically how they are doing. Many donor families have said receiving a personal note from the recipient offers them some comfort and reinforces their feelings that some good was able to come out of their tragedy. They appreciate any correspondence they receive.
The ironic part is that even though both sides want to know more about the other, they hesitate to write the first card/letter because they don’t want to intrude. As a result, both sides wait for the other to write first.
In almost every instance, the recipient(s) admit this is one of the most difficult letters they have ever written. Sometimes the hardest part is writing those first few words. If you want to write and are having trouble, please don’t hesitate to call (210) 614-7030 or 1-866-685-0277.
